- the types of personal information we collect about you;
- the purposes for which we collect that information;
- how we use that information;
- with whom we share that information;
- how we safeguard that information;
- the choices available to you regarding how we use your personal information;
- how you can contact us about our privacy practices; and
- What personal information do we collect?
- What is the purpose of the collection and use of your personal information?
- To whom do we disclose your personal information?
- How do we obtain your consent? How do you withdraw your consent to the collection, use or disclosure of your personal information? Are any circumstances where your consent is not obtained?
- What if there is a change in the initial purpose for the collection of your personal information?
- Do we knowingly collect personal information about children?
- How do we safeguard your personal information?
- Do we transfer your personal information to third parties for storage or processing?
- How long do we retain your personal information?
- Do we collect, use, and disclose non-personal information about you?
- How do we ensure the accuracy of your personal information?
- How can you access your personal information?
- What types of “cookies” and/or other technologies do we use and how can you change your “cookie” settings?
- Do we use third party advertising partners? If so, how can you opt out of targeted advertising?
- What type of analytics services do we use and for what purpose? How can you disable analytics?
- Who do you contact if you have an inquiry, complaint, or want to request a review of your personal information?
- How do we handle complaints?
- How can you unsubscribe from our commercial electronic messages such as messages regarding new products or services?
“Clinical Trial Participant” means a user who has joined our participant database and been selected to participate in a particular clinical trial being conducted by SNI.
“collection” means the act of gathering, acquiring, recording or obtaining personal information from any source, including third parties, by any means.
“consent” means voluntary agreement with the collection, use and disclosure of personal information for defined purposes. Consent can be either express or implied and can be provided directly by the individual or by an authorized representative, such as a parent or legal guardian. Express consent is permission that is granted by an individual taking a positive step to signify consent and may be given orally, electronically or in writing. Implied consent is the assumption of consent that can reasonably be inferred from a user's action or inaction.
“disclosure” means making personal information available to a third party.
“non-personal information” means information that does not identify a specific individual and which we are unable to connect to other information in order to identify a specific individual.
“Organization” means a company, entity or organization, including any business, but does not include an individual.
“personal health information” means information about an identifiable individual that relates to their health or health care history, the provision of health care to the individual, and any identifying information collected in the course of, and incidental to, the provision of health care services to the individual, but not aggregated information that cannot be associated with a specific individual.
“personal information” means information about an identifiable individual, and includes personal health information, but not aggregated information that cannot be associated with a specific individual.
“third party” means an individual other than the user, or the user's agent, or an organization other than SNI or an Organization, other than the user.
“use” means the treatment, handling and management of personal information by and within SNI.
“user” means an individual who visits the Sites and/or accesses the Service and/or uses the Service, as well as an Organization which visits the Sites and/or accesses the Services and/or uses the Service.
2. Personal Information We Collect
When you interact with us through the Service, we may collect or receive the following types of information.
Personal Information You Provide to Us
You may provide us with your personal information in different ways. For example, we may collect any or all the following personal information if the information is reasonably required to provide the Service to you:
(a) information that you provide when you join our participant database or otherwise complete forms on the Service, such as your name, company name, birth date, gender, email address, social media user ID, postal address, telephone number, and country of residence;
(b) information that you provide as part of the screening process for a particular clinical trial relating to your health and ability to participate in the particular clinical trial;
(c) if you are a Clinical Trial Participant, information that you provide to SNI as part of the clinical trial you are participating in. The type of information requested will vary depending on the needs of the particular clinical trial, but may include demographic information, information about your social history and a wide range of personal health information. Clinical Trial Participants will be provided additional information specific to our handling of their personal information in the context of the particular clinical trial prior to their participation;
(d) if you are entitled to compensation as a Clinical Trial Participant, information required to process a payment to you from SNI;
(e) your correspondence with SNI employees or independent contractors, including any questions, concerns or comments you may have about the Service or problems that you report;
(f) comments, videos, photographs, and any other content or information that you may submit to the Service; and/or
(g) details of your requests made through the Service.
Technical Information We Collect Automatically
When you visit the Service, we may collect, using electronic means, technical information. This information may include:
(a) the IP address of your computer and which browser you used to view our Service;
(b) operating system;
(c) resolution of screen;
(e) language settings in browsers; and/or
(f) the site you came from and searched for keywords if arriving from a search engine.
This technical information (some of which in certain instances may be considered personal information) is aggregated and used to measure and improve effectiveness of our Service. We do not attempt to combine this technical information with other personal information we collect on our Service.
3. Purpose of Collection and Use of Personal Information
SNI collects your personal information and will use your personal information as is reasonably required for the following purposes:
(a) to provide web applications, the Service, and/or the other services or information that you request;
(b) to process your request to join our participant database;
(c) to assess your suitability for a particular clinical trial, if applicable;
(d) if you are a Clinical Trial Participant, to track and manage your progress through a clinical trial, and generally conduct the clinical trial and compile the results of said clinical trial as described to you prior to your participation;
(e) to verify your identity if you submit comments, videos, photographs, opinions, or any other content or information to the Service;
(f) to respond to questions, comments, requests, job applications, applications to our participant database or complaints that you submit to SNI;
(g) to collect amounts owing from you to SNI, if applicable;
(h) to process payments made by SNI to you, if you are a Clinical Trial Participant and entitled to compensation;
(i) to track communications with you;
(j) to analyze use of the Service and to improve the Service;
(k) to send emails, newsletters, regular mail or other communications you have consented to receive from SNI;
(l) to provide Service-related announcements or notifications to you;
(m) to aggregate your personal information resulting from the combination and/or aggregation of certain raw personal information collected from you with other data in a way that no longer personally identifies you;
(n) to display advertising on the Service or to manage and serve our advertising on other sites. See Section 16 on targeted advertising and how you may opt out;
(o) to fulfill a purpose that we disclose to you when we request your personal information; and/or
(p) to meet legal and regulatory requirements.
Your personal information will only be collected and used by SNI and our employees, independent contractors, agents, partners and service providers in a manner consistent with the activities of SNI. Access to your personal information by SNI employees, independent contractors, agents, partners and service providers is limited only to those authorized, based on their need to deal with the personal information for the reason(s) for which it was obtained, including to enable them to perform a business, professional or technical support function for SNI.
4. Disclosure of Personal Information
SNI may disclose your personal information to:
(a) its employees, independent contractors, agents, partners, distributors, retailers and service providers as is reasonably necessary to enable these parties to perform a business, professional or technical support function for SNI;
(b) a person who, in the reasonable judgment of SNI, is seeking the information as your agent; and
(c) a third party or parties, where you consent to such disclosure, the disclosure is necessary to protect and/or enforce SNI’s legal rights and/or obligations, or the disclosure is permitted or required by law.
Corporate Reorganization and Business Transfers
SNI does not disclose the personal information of Clinical Trial Participants to our client who sponsored the clinical trial. Personal information collected in the course of a clinical trial is aggregated in such a way as to produce a report which does not include any information about an identifiable individual.
Different types of consent may be appropriate in different circumstances. Where personal information is particularly sensitive, the purpose for which we collect it is outside of your reasonable expectations, or where it creates a meaningful risk of significant harm, express consent is required and will be obtained separately.
There are some limited circumstances where consent is not required for the collection, use and disclosure of your personal information. For example, we may disclose personal information without your knowledge or consent for the purpose of collecting a debt you owe to us. We will only process your personal information without your knowledge or consent where this is permitted or required by law.
You may withdraw your consent to the collection, use or disclosure of your personal information by SNI at any time, subject to legal or contractual restrictions and reasonable notice. In certain circumstances, your withdrawal of consent may result in the inability of SNI to continue providing aspects or optimization of the Service to you. Please contact SNI for more information regarding the implications of withdrawing consent.
6. Change of Purpose
SNI will only use your personal information for the purposes for which we collected it, unless we reasonably consider that we need to use it for another purpose and that purpose is compatible with the original purpose. If we need to use your personal data for an unrelated purpose, we will notify you and obtain your express consent to do so pursuant to Section 21.
Please note that we may process your personal data without your knowledge or consent where this is required or permitted by law.
The Service is intended for general audiences and is not directed to children under the age of 18. We do not knowingly collect personal information from children under the age of 18 without the express consent of their parent or legal guardian. In the event that we learn that we have collected personal information from a child under the age of 18 without such consent, we will take appropriate steps to delete that personal information. If you become aware or believe that a child has provided us with personal information, please contact us as provided in Section 18.
8. Safeguarding Your Personal Information
SNI is committed to safeguarding your personal information. SNI uses appropriate security measures to protect personal information against risks such as loss or theft, unauthorized access, disclosure, copying, misuse, modification or destruction, and any other unlawful form of processing of the personal information in our possession regardless of the format in which it is held. The methods of protection and safeguards used by SNI include, but are not limited to:
- Administrative safeguards such as privacy and security policies and procedures, privacy and data protection training for SNI employees, independent contractors, and agents;
- Technical safeguards such as security testing, vulnerability scans, and technological measures, including the use of passwords, encryption, firewalls, audit trails, and secure coding frameworks;
- Physical safeguards such as locked filing cabinets, and need-to-know access for SNI employees, independent contractors, agents, partners, and service providers.
In any organization, failure to protect personal information can increase the risk of a privacy breach which can lead to things such as financial loss, reputational harm, fraud, or identity theft. While SNI cannot guarantee that a privacy breach will not occur, SNI will make every effort to prevent such occurrences by implementing the above security safeguards.
SNI also ensures that its employees, independent contractors, agents, partners, and service providers with access to personal information are made aware of the importance of maintaining the confidentiality of personal information.
SNI takes care in disposing of or destroying personal information to prevent unauthorized parties from gaining access to the information.
While SNI is committed to safeguarding your personal information, we cannot ensure or warrant the security of any personal information we collect either directly or automatically from you, and you provide your personal information at your own risk.
SNI can not guarantee that such personal information may not be accessed, disclosed, altered, or destroyed by breach of any of our security safeguards. To the degree that personal information is of a sensitive nature, in the event of a breach, there may be a risk of significant harm to you which includes bodily harm, humiliation, damage to reputation or relationships, loss of employment, business or professional opportunities, financial loss, identity theft, negative effects on the credit record and damage to or loss of property.
SNI also cannot guarantee that information sent or received over the Internet is secure and does not make any representation or warranty concerning the security of personal information communicated to or from SNI via the Internet or regarding the interception by third parties.
9. Cross Border Transfer of Personal Information
SNI has measures in place to ensure that during cross-border transfers of your personal information the personal information is subject to appropriate safeguards in accordance with data protection laws. These measures typically include contractual safeguards stipulating the confidentiality of the information and the purposes for which it is to be used.
Where and when appropriate, we will transmit amended personal information to third parties having access to the personal information in question.
10. Retention of Personal Information
11. Non-Personal Information
SNI may collect, use, and disclose non-personal information, including aggregated data resulting from the combination and/or aggregation or certain raw data collected from you with other data in a way that no longer personally identifies you. We make no attempt to link this non-personal information with the identity of individuals. We may permanently archive non-personal information for future use in any manner whatsoever.
12. Accuracy of Personal Information
SNI is committed to keeping your personal information as complete, up-to-date, and accurate as is necessary for the purposes for which it is to be used. SNI will promptly correct or complete any personal information found to be inaccurate or incomplete. Where appropriate, SNI will transmit amended information to third parties having access to the personal information in question.
13. Access to Personal Information
Upon request, SNI will provide you with a reasonable opportunity to review the accuracy of your personal information. Such personal information will be provided within a reasonable time of the request and at a minimal or no cost to you.
Also upon request, SNI will provide an account of the use and disclosure of your personal information and, where reasonably possible, will state the source of the information. In providing an account of disclosure, SNI will provide a list of organizations to which it may have disclosed personal information about you when it is not possible to provide an actual list.
In certain circumstances, SNI may not be able to provide access to all the personal information we hold about you. In such a case, we will provide the reasons for denying access upon request. Such reasons may include:
(a) if doing so would likely reveal personal information about another individual that cannot be severed, or the information could reasonably be expected to threaten the life or security of another individual;
(b) if doing so would reveal any of our confidential information;
(c) if the information is protected by solicitor-client privilege;
(d) if the information was generated during a formal dispute resolution process; or
(e) if the information was collected in relation to the investigation of a breach of an agreement or a contravention of a federal or provincial law, or that of a foreign jurisdiction.
14. Cookies and Similar Technologies
The Service uses “cookies”, which are small text files placed on your computer or other device when you visit a website. When you visit the site again, the cookie allows that site to recognize your browser. Cookies may store user preferences and other information.
There are three main types of cookies:
(a) Session Cookies are specific to a particular visit and limited to sending session identifiers (random numbers generated by the server) so you do not have to re-enter information when you navigate to a new page or check out. Session cookies are not permanently stored on your device and are deleted when the browser closes;
(b) Persistent Cookies record information about your preferences and are stored in your browser cache or mobile device and remain on your device between browsing sessions. For example, a persistent cookie may be used on a website to remember your log-in details so you will not need to enter those details each time you visit that website; and
(c) Third Party Cookies placed by someone other than us which may gather data across multiple websites or sessions.
We use the below listed cookies to perform the following functions:
(a) Strictly Necessary / Technical Cookies that are essential to enable you to move around a website and use its features. You cannot withdraw your consent to the use of these types of cookies because without them, the Service cannot be provided.
(b) Analytical / Performance Cookies that collect information in aggregated form about how users interact with the Service so that we may improve functionality. These cookies are sometimes placed by third party providers which enable features or functionality provided by third parties in connection with the Service. For example, advertising, interactive content, and analytics (see Section 17). The parties that set these third-party cookies can recognize your device both when it visits the website in question and when it visits certain other websites.
(c) Functional Cookies that allow a website to remember choices you make, recognize you when you return and to personalize content.
(d) Targeting / Advertising Cookies that track browser habits and used to deliver targeted (interest-based) advertising based on your browsing activities and interests. See Section 16 on how you may opt out of targeting advertising.
We may use other technologies similar to cookies like web beacons, which are sometimes called “tracking pixels” or “clear gifs”. These are tiny graphics files that contain a unique identifier that enable us to recognize when someone has visited the Service or opened an email that we have sent them. In many instances, these technologies are reliant on cookies to function properly, and so declining cookies will impair their functioning.
Right to Refuse the Use of Information Collection Technologies
We obtain your consent to our information collection technologies through our opt-in mechanism on the Service. You have the right to object to the use of information collection technologies such as cookies. Regular cookies may generally be disabled or removed by tools that are available as part of most commercial browsers, and in some but not all instances can be blocked in the future by selecting certain settings. Each browser you use will need to be set separately and different browsers offer different functionality and options in this regard.
Please be aware that if you disable or remove these technologies you may find that certain functions and features will not work as intended on the Service, thereby reducing the quality of your experience, and that when you revisit our website your ability to limit cookies is subject to your browser settings and limitations.
15. Links to Other Websites
16. Targeted Advertising and How You May Opt Out
We may use third party advertising partners such as advertising networks, exchanges, and social media platforms to display advertising on the Service or to manage and serve our advertising on other sites. You have a variety of options to opt out of interest-based advertising ranging from browser controls, add on utilities such as ad blockers, and other opt out tools. Opt out tools may include organizations such as:
- Network Advertising Initiative: https://optout.networkadvertising.org/?c=1,;
- Digital Advertising Alliance (“DAA”) of Canada: https://youradchoices.ca/;
- DAA YourAdChoices: https://youradchoices.ca/en/tools.
The Service utilizes Google Analytics, a web analysis service from Google Inc., 1600 Amphitheatre Parkway, Mountain View, CA 94043, USA ("Google"). Google Analytics uses "cookies," which are text files placed on your computer, to help the website analyze how users use the Service, compiling reports on the activity of the Service for the Services’ operators and providing other services relating to website activity and Internet usage. The information generated by the cookie (including the IP address) is transferred and stored on a Google server located in the United States.
Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google's behalf. Google will not associate your IP address with any other information held by Google.
We may also use additional analytics programs from time to time to process non-personal information about you, such as All in One SEO and MonsterInsights.
We make no attempt to link this non-personal information with the identity of individuals using the Service. Non-personal information may be permanently archived for future use in any manner whatsoever by SNI.
Disable Google Analytics
You can prevent the collection and processing of cookie created data relating to your utilization of the Service (including your IP) via Google by downloading and installing the browser-plugin available under the following link (https://tools.google.com/dlpage/gaoptout?hl=en).
Google currently offers this opt-out tool for Internet Explorer 11, Google Chrome, Mozilla Firefox, Apple Safari and Opera.
18. Contact Us
SNI Privacy Officer
Mailing Address: 1-1249 Clarence Ave, Winnipeg, Manitoba, Canada R3T 1T4
Telephone No.: 204-254-2234
20. Unsubscribe from Commercial Electronic Messages
We may send you commercial electronic messages (such as marketing or promotional messages) if you have:
- provided us with your express consent to receive these messages;
- recently purchased or leased a product or service from us;
- entered into a contract with us or some other form of business relationship with us;
- requested information from us; or
- applicable law otherwise permits us to send commercial electronic messages to you.
If you no longer wish to receive commercial electronic messages from SNI regarding our new products or services, promotions, or other similar communications, you may unsubscribe here. Please note that, after you unsubscribe, SNI may still send electronic communications to you in certain limited circumstances, such as to provide you with Service notifications and billing information, or to provide information that SNI is legally obligated to provide you.
Date: July 4, 2023